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Friday, August 31, 2018

WHY COSMETICS NEED TO BE GLUTEN FREE: MY STRUGGLE WITH DERMATITIS HERPETIFORMIS & CELIAC DISEASE


You guys, making this video about what happens to me when I get ANY kind of contamination from gluten was one thing. Posting it and thinking about how serious it is for me and others like me was another. It has weighed on me for almost six years. In one respect, a burden was lifted in sharing it and not trying to hide anymore and in another, it's such a hard struggle on the daily that I got a little depressed after I posted.

I have celiac disease and a rare skin complication from it called Dermatitis Herpetiformis. It's not herpes as the name implies; it's literally a blistering dermatitis. I have to take a very risky medicine that has a potentially deadly side effect and it's very scary. If it goes bad, it's fatal. There's no recovery so they don't like to use it. However, the pain and itching of the condition becomes intolerable.

I recently had a gluten contamination from a cosmetic product. My outbreaks last at least 10 months of constant itching and sores. After that time, it takes a few more months to heal. It takes great restraint not to scratch the heck out of my face. I wake up at night with my fingers dug into my skin and blood on them. I've tried to wear gloves at night but apparently I take them off so I can scratch. It's ruthless. It's torture. So I take the medicine for a month at a time and have my blood tested every two weeks and I'm scared to death thruout the duration.

For someone like me, gluten in any cosmetic product can cause an outbreak of DH, which means I'll need the medicine and I could die. And that's not even me trying to be dramatic, it's the truth. It's frightening. It is my hope that one day, no one will ever use gluten in a shampoo, a skincare product or makeup again.

Thank you for watching.


12 comments:

  1. So many people try to climb on the Celiac wagon when they don't belong there. It's a serious problem and one that has to be handled properly. I know you have to watch everything you eat as well as the cosmetics and skincare. I'm glad you posted this and hope it goes viral.

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  2. It's disturbing to me that so many people have made being gluten free "trendy" that many are quick to discount those that have true sensitivities. While I hate that you've had to experience, you are sending out such an important message to the world at large about celiac disease, not just the beauty community. I hope companies take note!

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  3. Its so important to speak up about things like this that many people can’t understand. Gluten Free is so often considered trendy that its easy to forget it has very serious consequences.

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  4. Wow!!! I never knew it had such huge effects on the skin too!!! Thanks for sharing and enlightening the public!

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  5. Such a good post and I'm glad you went ahead and talked about it!

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  6. I’m so sorry this happened to you! I would never think gluten would be in makeup!

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  7. Girl, I am so glad that you made this video! Brava! <3 <3

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  8. That is such a scary thing to worry about. I'm so sorry you had that experience.

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  9. I'm so sorry you had that reaction. Hopefully makeup items get more labeling on their packaging!

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  10. It sucks that because companies use gluten in their products, which I feel is unnecessary, and that you and others have to deal with this. You shouldn't have to sit in discomfort for months while your skin turns over or have to make a choice to take a potentially fatal medication because a company wanted to use a cheap ingredient.

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  11. I know it can be so scary opening up about health conditions but you’re raising awareness and spreading knowledge which is awesome! As ignorant as it sounds, I have never even thought about gluten in beauty products because I’ve always thought about gluten intolerance being an internal issue. I’m sorry to hear your struggle and the risk that comes with taking that medication.

    P.S. that concealer looks amazing and covers the redness perfectly!

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  12. Thank you so much for the amazing video!! It’s so true there are so many companies who use stuff in cosmetics that are not good for you or people can’t use because of them!! It needs to be talked about so thank you again for coming on video!!💜

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