Showing posts with label gluten. Show all posts
Showing posts with label gluten. Show all posts

Friday, August 31, 2018

Why Cosmetics Need To Be Gluten Free: My Struggle With Dermatitis Herpetiformis & Celiac Disease


You guys, making this video about what happens to me when I get ANY kind of contamination from gluten was one thing. Posting it and thinking about how serious it is for me and others like me was another. It has weighed on me for almost six years. In one respect, a burden was lifted in sharing it and not trying to hide anymore and in another, it's such a hard struggle on the daily that I got a little depressed after I posted.

I have celiac disease and a rare skin complication from it called Dermatitis Herpetiformis. It's not herpes as the name implies; it's literally a blistering dermatitis. I have to take a very risky medicine that has a potentially deadly side effect and it's very scary. If it goes bad, it's fatal. There's no recovery so they don't like to use it. However, the pain and itching of the condition becomes intolerable.

I recently had a gluten contamination from a cosmetic product. My outbreaks last at least 10 months of constant itching and sores. After that time, it takes a few more months to heal. It takes great restraint not to scratch the heck out of my face. I wake up at night with my fingers dug into my skin and blood on them. I've tried to wear gloves at night but apparently I take them off so I can scratch. It's ruthless. It's torture. So I take the medicine for a month at a time and have my blood tested every two weeks and I'm scared to death thruout the duration.

For someone like me, gluten in any cosmetic product can cause an outbreak of DH, which means I'll need the medicine and I could die. And that's not even me trying to be dramatic, it's the truth. It's frightening. It is my hope that one day, no one will ever use gluten in a shampoo, a skincare product or makeup again.

Thank you for watching.


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